Lupus Foundation SA | About

ABOUT LUPUS THE BUTTERFLY EFFECT FOUNDATION


COUNT IT ALL JOY

This within my desire, to know what I want
Within my vision is to prosper in my plan
To label me a victor without a taste of war
But this has proven not to be life
More of a fantasy as it is without sweat
Victory attainable but with its trials
To climb a ladder is not without energy
But count it all joy;that which you're going through
Be quick to listen and patient in your steps
In your darkest trials let anger not consume you
To persevere under trial, better than refined gold
Count it all joy, and trace of sunlight will show itself....
- By Katlego S'Kay Magagane 24th July 1990 to 13th June 2015

Sibongile Komati

Sibongile Komati

Founder & Patron

Sibongile Komati is currently the Founder & Patron of the newly formed Lupus, the Butterfly Effect Foundation. She is passionate about doing advocacy work about Lupus, a condition many people know very little about yet has such devastating consequences. Her passion and enthusiasm stem from her personal journey and experience with the disease. The aim of the foundation is to share and invite as many sufferers and supporters as possible to become integrally involved in educating all affected.

Sibongile is a graduate of Vista University where she obtained a Baccalaureus Procurationis qualification. She also has a Certificate in Human Resource Management, and has done short courses in Financial Markets, Presentation Skills, Project Management, and New Managers Programme at WITS. In an attempt to be of greater support to the community of Lupus sufferers, Sibongile did a Life Coaching Course with Robert Simic Coaching Institute.


Work experience includes The Financial Services Board, Candidate Attorney functions, Consultant, Educator, and administrative support. She also gained business experience by doing events planning and project management for companies. S’bongile has served as chairperson of the Parents Association of St Marys Diocesan School for Girls, Pretoria and now serves as the Chairperson of the St Marys Diocesan School for Girls, Pretoria Outreach Advisory Board. She has conducted the Administrative and Financial functions for Dr SM Komati’s surgery for several years.

Sibongile is a devoted mother and wife who is currently driven by her passion to grow awareness around Lupus and has led the formation of a Board of Directors to assist in this new endeavour. We would like you to note that the Lupus the Butterfly Effect Foundation has been established to support people affected and raise awareness about Lupus Erythematosus. We say “You Are Not Alone” because there are many autoimmune disorders or diseases, but our focus is on Lupus. We therefore are not experts that deal with the malfunctions of the body’s immune system but advise that you consult your physician and have the correct physical examination and blood tests done e.g. antinuclear antibodies and DNA for genetic analysis.

WHO?

Lupus the Butterfly Effect Foundation has been established to support people affected and raise awareness about Systemic Lupus Erythematosus . The foundation will not give expert advice on this debilitating disease but 'You' have to consult your doctor, physician and or rheumatologist if symptoms develop gradually over time, the following criteria for diagnosis may be used - clinical signs and symptoms supported by the tests listed below;


  • Rheumatoid Factor
  • Autoimmune Profile
  • Anti Nuclear Antibodies (ANA)
  • Anti-double stranded DNA for genetic analysis (Anti-dsDNA)
  • Anti Phospholipid antibodies
  • AntiSmit (anti-Sm)
  • Extractable Nuclear Antigen (ENA) Panel
  • Histone Antibody (drug-induced lupus)

WHAT?

The Foundation will be offering counselling and life coaching ( local, online, peer and community support groups) to help you find ways to cope with the stress of living with Lupus. Exercise and healthy eating habits and programs offered by nutritionists or dietician will help you cope with Lupus. We will have workshops and awareness campaigns in all the provinces and if necessary outside South Africa.

WHY?

In South Africa there are no statistics of people living with and those who have died from Lupus and there is no known research about Lupus. Through our campaigns and workshops we aim to create a platform where Dr's, nurses and all interested parties to engage and eventually we will be able to solve this mysterious disease. "It has been proven that early detection and treatment of symptoms can control flare-ups and prevent damage to organs", Healthline Network,Inc.